The waiting period is a difficult time for most patients. It may last a few days or stretch to many months. The average wait is 8 to 12 months. For some, it can feel that life is "on hold" until you get "the call" because you are unable to travel far, need to cease work, or because your symptoms make you tired and uncomfortable. It can be a stressful time for carers and families as they worry about the health of the patient.
Attendance at Pre-Transplant Support and Education Groups is encouraged to build emotional resources and meet people who are facing the same challenges. The groups are run once a month,each session covers different topics and transplant recipients share their stories.
Patients are advised to keep as active as possible whilst waiting for their transplant. This may mean exercising several times per week or making sure you leave the house for some fresh air at least once per week. Do as much activity as your body allows.
Keeping active will benefit you both physically and mentally.
If you are having a difficult time coping with the waiting period please ask the Nurse co-ordinator for an appointment with a Psychiatrist or speak with your Social Worker.
During your time on the waiting list you will need to attend regular outpatient clinic appointments which are held on Tuesday afternoons in Clinic 5. You will usually see a doctor and a Nurse co-ordinator and sometimes may need to be reviewed by other staff. You will be required to have frequent blood tests so doctors can track your progress.